Plus, looking healthy rather than sickly is generally a good thing. The nickname for CF is 65 roses. Roses certainly evoke a much more lovely image than a life-threatening disease. In fact, the nickname stuck so much that it is still used today and roses have become an unofficial symbol of CF. Have questions about these facts or CF in general? Leave them in the comments section below. Thank you for this very helpful information.
For her sake. I do understand the invisible part. God bless you. Stay strong. We are fighters, and praying together for a cure for our illness all invisible and visible illnesses.
For example, it made some relationships become serious quickly. When you go through a life-saving surgery with someone by your side, it does strengthen the relationship a lot very quickly. Also, day-to-day type activities are different. But I was very fortunate. I had a lot of great relationships and I learned from each one.
Then I met Andrew now my spouse , he was by my side through everything. He not only encouraged me to do my meds, but would help me get them ready without me having to ask. Our marriage strains sometimes but we have to work hard and realize that it is from fear more than anything. Our marriage has oftentimes taken a back seat to cystic fibrosis and we have had to work to get it back where it needs to be.
We have really learned to depend on each other in times where we are worried about our son. Having a child with cystic fibrosis is really a test in a marriage. You have to combine anxiety, the newness of caring for that child, the scariness of the situation, and the unknowns of the future.
Mucus , digestion issues , ports , hospital admissions, chronic coughing , and pills and treatments all have their necessary place in a relationship with someone who has CF.
It can make dating hard and intimidating at first. Revealing and coping with CF for a couple can be overwhelming and difficult as well. I have been married for 5 years and with my husband for 8 and we are still learning how CF impacts our lives and partnership. Plus, there are times where our romantic life has to take a backseat when I am sick or exhausted from the daily drain of CF.
Yet, every season he learns how to better support me, and I learned to ask for help. I am lucky my husband has always viewed CF as just another part of our lives. I only had two or three boyfriends before I met my husband.
I had a number of first dates and I was always upfront about my cystic fibrosis me taking enzymes at dinner usually provided a natural segue to the subject. Did you know that we live stream our yearly UK Cystic Fibrosis Conference for people who can't attend in person? After the event you can access all of the talks and workshops online just by registering on our website or logging in and then following the link to our on demand section.
There's something for everyone on our forum. Head on over and start talking about the issues that matter to you! Whatever challenges you're facing, if you need someone to talk to try our scheme for connecting people with cystic fibrosis.
There's loads of support available for people with cystic fibrosis and their families, from grants to help with benefits. Cross-infection at events.
0コメント